About Us

My name is Beatriz  Adame-Foreman a mother of  two wonderful children by the names of Grant and Sebastian Foreman . My oldest son Grant suffers from a rare immune disorder called Candle Syndrome. I decided to share my sons journey with the world to educate those parents that may not be aware that what their child is going through is similar to what my son has gone through in the last 3 years. During his journey I have learned that there is many parents or guardian that are in need of support not only financilly but also emotionally to cope with what the  child is going through. Our assumption has been that at times when the child has two parents they both work closely to comfort one another. But the reality of it is ,  that  the  way  they  cope  with  things   maybe  different.  

My husband and I met during our tenure in the dental field and during that time we became close friend that gave us the sense of support and foundation were we  grew not only individually  but as a couple. Our lives  change drastically in July 2017 were without  knowing God had a path for us that no one is prepared for..  As  a  couple  we made the decision to not allow this  to impact us personally but to grow as parents to support our child that needed us .  Our hands were tied and we had to trust the medical professionals to take over.  My husband biggest worry was to financially support  the  family and  be able to provide for everything that was needed for our child. For me is was more knowing that I would be able to resist everything that is  headed  our way to  provide strength  and  support for  our  family. 

Our purpose of sharing our journey is to help you connect with other parents or  guardians  that may  have a similar story as ours  or yours,  and  provide one  another  with hope, guidance and tips that will help you through the  difficult times. If you have a story to share or  simply need to connect with a professional that can  possibly  assist  you,  please contact me and I will provide you with the resources we  have.  In hopes to help others  we have also ask  for any donation that will go directly to the Phoenix Children Hospital .  Our sons journey is also part of the  website to give you  a a  little  more background of what we have gone through and the progress he has made.  We have had an opportunity of partnering with Dr. Michael Shishov DMD and the NIH (National Institute of Health ) to find a stable treatment for our child and others that suffer from this rare syndrome called Candle Syndrome. Thank you for taking the time to be part of our  story. We look forward to  the next chapter in our lives that would give us the opportunity to help other